9 thoughts on “17 of the Worst Symptoms of Fibromyalgia and How People Deal With Them

  1. I am 78 yrs old, and have suffered with fibromyalgia for about 35 years. Sometimes I can forget about it, but walking is a nightmare – I hurt so much and although I will plan a trip to town, by the time I get there and have found 1 shop, every time I have to come home and sit down. Am so frustrated by this nightmare situation – my son lives in Lanzarote and begs me to go over. It was ok when my husband was around – unfortunately he died last year. He was my carer, so now I’m very much on my own. Today is a feeling sorry for myself day, so I apologise for the whiny tone of this writing!

      1. I feel alone because no one understands and feel like I’m constantly having to justify the way I am. I can only tell you how I feel right now because I don’t remember what I felt an hour ago as I’m so medicated or its from the fog. I’m constantly told I don’t have Fibromyalgia and it’s all in my head by everyone I speak to from immediate family or anyone outside. The best one I keep getting told someone has MS and they’re living there life why can’t I. I can cure you I’ll take you out and show you how to have fun. I want to scream at these people and say I wish you would get this and then speak to me but I just smile and say yes sure. I haven’t had one person from doctors to people in my life who understand and make me as if I’m just making it all up. I have come out of doctors offices crying and wishing I was dead. Keep getting told by doctors and pain management clinic there’s nothing more they can do. The best one is what can we do for you? How the hell do I know. If I had the answer to that question would I be asking you for help. How I wish I was diagnosed with MS or even cancer then I wouldn’t be made to feel like this. So alone and wishing I wasn’t on this earth.

  2. I often rock forwards and backwards as no pain killers ever work, I also lightly tap myself where it hurts, about 50% of the time it helps, heat pads are from heaven.

  3. I was very happy to read this article. I often try to explain how fibromyalgia affects me to my family and friends, but I can’t seem to find the right words. They believe that if I eat right, exercise and get sleep (yeah, right), that all of my issues will get better and go away. But. that is so far from the truth. I am in a constant struggle to maintain my mind and to fight the pain so that I can just get through another day. I do find that on my “good” days, I feel as if I can do just about anything, but I pay for over the next few days or even a week. Nevertheless, I still continue to push forward to find my own path of healing and happiness. I will not allow fibro to take my life away.

    1. Faye Chandler – a lot of what you said hit home for me. The part of trying to do something on the “good” days…you do pay on the days following. I get mad and try to do more all at one time and suffer later. I seem to fall a lot, don’t know if it’s related (balance issues), or not, but they don’t help at all. My grandchildren help me as I so enjoy my time with them when I can see them. They are Gods gift for me. Just love them to pieces. Make me smile all the time, it’s just so hard to walk some days. I recently had issues watching my grandson alone as I have trouble going up their stairs to the 2nd floor carrying him whether up or down. He’s over 20 lbs. now, and with my fall history I worry. I usually make my hubby go with me. Just as backup. It’s very hard when my daughter doesn’t fully understand or doesn’t want to believe what this horrible thing does. And my sister believes if you just lose weight you’ll feel better. I had the gastric sleeve 2 yrs ago and lost 90 lbs, it doesn’t help. I’m sure I get around easier not carrying the weight-but the pain is still here. Sorry for the down comments. Thank you for sharing. This helps.

  4. Not having understanding is the worst thing for me. Loved ones think I over reacted when they reach for me or hug me, not realising the pain I feel. Being the brunt of the joke because I say something stupid, when it’s because I can’t find the right words or am too tired to keep up with the conversation. Feeling like I need to keep up and do the work and provide for my family, when there are days I just want to take my medication and go back to bed without explaining why.

  5. I have had fibromyalgia for 20 years plus 6 years before the diagnosis. It has been progressively getting worse. Some days I can’t wear anything but very loose silky pajamas or sweats. I found that the warmer I stay the better I can feel. An electric blanket helps. My family tries to be supportive but they don’t really understand, so I find myself saying “I am fine” to avoid having to explain. I have recently started using medical marijuana. It is the only thing that has helped. It doesn’t take away the pain completely, but it makes it much more manageable for a few hours.

  6. I have the best of all combinations, stenoses, one has been widened by a operation but there are more. So I have a killing backace in combination with polyneuropathy and fibromyalgia.
    My age is 77 and suffering for the last 5 years, I had morphine, did not help. Now I am on Oxycodon, Gabapentine and Duloxetine. Does it help???? Sometimes I think it does, but what is this cocktail doing for my body.
    I am so tired that I an sleep all day, but after sleeping I am as stiff as a stick, then forcing myself to do excercises, just to get out of bed.
    I have everything one can wish for, but am I happy, NO!

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